If you would prefer your information not to be shared on the London Care Record, please complete the Individual Rights Request form at the end of this document.
1. What is the London Care Record?
The London Care Record brings together your health and care information from all over London, into a single digital view. Professionals working across multiple care settings use the London Care Record to access up-to-date information when treating or caring for you. The London Care Record is available for health and care professionals to access securely through their fully auditable electronic health record systems. The system in South East London is hosted by Lewisham and Greenwich NHS Trust and it is linked with health and care systems across London to provide the London Care Record.
2. What are the benefits of sharing my health and care information?
The London Care Record allows health and care professionals in London to see a more complete picture of your health and care needs, in one digital view. It includes relevant information such as allergies, medications, test results, and any care or treatments you may be receiving, or have had in the past. When health and care professionals are more informed, it helps them to make the right decisions quickly, providing better and safer care. This is especially important during emergency situations or out of normal working hours. Only those involved in your care, and with whom you have a legitimate care relationship, are allowed to view your records via the London Care Record
3. How is my information protected?
By law, everyone working in, or on behalf of the NHS and social care, must respect your privacy and keep all information about you safe. The London Care Record uses a secure system that meets NHS and social care security standards. The system keeps an audit trail including the time and date when your record is accessed. If you have access to your patient record through a GP app you will be able to see this information. The laws on data protection are clear and we follow them to the required standards. Organisations who use the London Care Record are responsible for ensuring only the right people access your record and have strict policies and protocols in place to prevent inappropriate access, meaning staff must have a legitimate care relationship with you.
4. How do I object to my information being shared via the London Care Record?
The London Care Record provides a range of benefits to assist in the provision of your care. Your information is only accessible by a professional with a legitimate care relationship to you, when providing you care or treatment. If you wish to request for your information not to be shared via the London Care Record, you should first speak to your health or care professional about your concerns. We want anyone who has concerns about their information being shared to understand how it could negatively impact the care the NHS and adult social care services can provide. If health and care professionals can’t access your medical record:
- It might mean that tests or investigations are repeated because results from other organisations can’t be accessed.
- You may need to repeat the same information to different health and care professionals.
- The staff treating you won’t be able to see what has happened to you in different parts of the NHS and care system. They will only be able to see the record in their organisation, such as that particular hospital or GP practice.
- The staff treating you might not know what medication you are taking.
- It may delay your treatment.
- It may mean health and care professionals won’t contact one another to check about your care history.
- Vital medical history may not be shared if you arrive at hospital unconscious or unable to share your own details.
If you want to be removed from the London Care Record, please submit the completed form below and click on the submit button. Alternatively, you can print and complete the form and post it to the address at the end of this document or scan and return it to the email address. Please note if you post the form, you accept the risks of it potentially being lost in transit.
Your request to not share your information in the London Care Record will be reviewed by professionals providing your care before it is approved. Very occasionally there are overriding reasons why your request will be refused. Either way, we will inform you of the outcome.
So that we can process your Individual Rights Request, please can you provide the Trust with 2 forms of proof of identity. This can be a scan or picture of either a government issued photograph ID document (e.g. passport, UK driving licence, or UK Government biometric residence permit (BRP)). Plus, a scan or picture of one item of proof of address with your name and address on the correspondence, such as UK Building Society or Bank statement, Local Council Tax bill or utility bill (water, gas, or electricity bill (not a mobile phone bill)) dated within the last 3 months. We are content for personal details of the contents of the correspondence other than name and address to be concealed.
